Sorry its been so long...My intentions were to write all about Brody, his doctors appointments, feedings, outings, post all pictures and etc. Well, that didn't happen. So here we go! The past 2 months 1 week and 4 days of our life!
10-6 Brody's Here 7lbs 8oz & 20.25 inches long.
10-8 Pedi then Riverside for jaundice test
10-13 Back to pedi 7lbs & 5oz
10-16 Radiologist in Norfolk for kidneys
10-19 Radiologist in Norfolk again..unable to cath
10-21 Pedi 2 weeks well visit then Norfolk for Urologist again 8lbs & 3oz
10-26 Cardiology in Norfolk 8lbs & 4oz
10-29 Occupational therapy
11-5 OT
11-16 Urology again still cant cath
11-17 6 weeks checkup for me
11-19 OT
11-23 Started PT today
11-26 Eric's family in town thanksgiving
12-1 ob appt
12-3 OT
12-7 PT
12-8 2 month well visit 10lbs 6oz & 24in. start cereal. 2 skinny 95% for height 45% for weight
12-10 OT
12-14 PT
12-17 OT then urologist and straight to cardiologist
*insert feedings, changing diapers, screaming baby, no sleep, personal time, and eating*
.....now to explain!
from the day he was born the doctors saw something different about Brody...to us he was an amazing, adorable and perfect baby boy. To them, they saw it all different.
his nose was to wide
he had a extra dimple above his hiney hole
his hands and feet were contracted
he had a webbed neck and too short
hes hands had too many lines on the bottoms and not enough on top
hes feet looked rocker bottom-ish and had no lines at all
hes legs were drawn up to his body
im sure im forgetting something but you get the idea
then soon to find out that his kidneys were worse than we thought...he has the hydronephrosis in the right kidney and its pretty severe...we were going to have some test ran but then we find out something else is wrong with his willy and he cant be cathed because of a blockage...so we are following it with ultrasounds until he is old enough to be put to sleep. =(
and thennnn......we find out that he has a heart issue...the pedi. assured me that more than likely it was perfectly normal that it would fix itself after a couple days...never that simple...we got to the cardiologist and its not what the doctor thought...its called an ASD. its an 8mm whole in his little tiny heart....my little boy is still so new and already has a broken heart...and on top of that...there are T shaped tubes that carry blood from here to there and they are too skinny. We are currently following his heart with ultrasounds and hoping that the whole closes by itself.
kidney and heart can both fix themselves but if not both COULD require surgery that is pretty "simple" he would go home the next day...this is not an option until after the age of 3.
hmmm....physical and occupational therapy: we go there 2 times a week and i just signed up for early intervention to have someone come out to the house once a week for additional therapy. his hands and feet look much better than what they did at birth. the therapist both think that his arms are as straight as they are going to get...same with the feet and legs...although he is only missing a small amount of range.
we are waiting to hear from genetics they think that his genes may have something to do with all of these problems...from birth they threw around terms such as trisomy 18 these rumors were out to a rest when his first genetics test returned saying 46 xy. now they need to check for little things...like extra little pieces or missing little chucks. the first test ruled out alot of the big stuff such as the trisomys, downs, etc...but who knows what the next will say...we are praying that everything is completely normal and we just have this special and silly little boy =) the way they explain things to me would be...it could be a freak incident where me and.or Eric had nothing to do with it OR maybe Eric or myself had some weird genetic thing that didnt work together OR maybe its just one of us and our genes are all they but maybe mixed around and Brody didnt get the mixed around pieces. im betting on Eric! only kidding!!
only time will tell our future. there may be a few bumps in the road but its nothing that we cant handle. we both love being parents and brody is the most amazing child i have ever seen in my life. he has such personality, smiles all the times, and absolutely loves his mommy and daddy.
he has just recently found his hands, he shoves the in his face all the time and tries to swat at different things but almost always misses. he he he. we have been through 3 different formula and we are not on soy formula..I have never in my life seen a baby that hated to eat as much as him with the other formulas...poor thing. oh Christmas lightssss!!!! he loves all things the light up. his sea horse...Sheldon...his great grandma Nancy gave it to him and Sheldon goes everywhere with Brody, all doctors appointments, bed, EVERYWHERE!
well i have to run i have to go to the urologist and cardiologist. i will write more when i get home. there's lots more to tell
Thanks for reading about our life
Love,
Abi, Eric & Brody
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Just got home from a long day of running around. His urologist appointment went well. We wont know anything until tomorrow. Hopefully when they call with the results they tell us his kidneys are looking a little better. after we finished there we went upstairs to the cardiologist. it was our first time meeting her she is very nice. Brody feel asleep during the echo cardiogram so she was able to get really good pictures. BUT of course for us nothing ever goes as smooth as we hope. they thought his whole was 8mm and now they are saying its 9.4mm its impossible for them to get bigger so it just means they measured better this time. the doc said more than likely it would have to be closed with surgery. they said they like to do them when they are 3 years old but they want us to come back in 2 months and check it again. they said he isnt gaining weight like he should. well let me rephrase that they weighed him today and measured him again and he is really 95% for his height and only 10-15% for his weight. so they are sure if his heart is keeping him from gaining weight correctly or not. she thinks that it may be some type of syndrome so she again told me i need to see the geneticist. that appointment has been set now for may 11th. she is going to try to get us in a little earlier.
ok well im gonna go now. eric wants me to help him with this puzzle. i will post the results of the kidney ultrasound when i hear something